How does Register4 work?
Register4 is an online community where the public can sign up to receive information about cancer research projects that require participants. We hope that Register4 will make the process of recruiting participants to cancer research projects a faster, more efficient and more cost effective process.
For detailed information, go to our How Register4 Works Page.
How is Register4 funded?
Register4 is funded by the National Breast Cancer Foundation (NBCF). Visit www.nbcf.org.au for more information.
Who is responsible for governing Register4?
The National Breast Cancer Foundation Board of Directors.
How to apply for access to the Register4 resource
For detailed information, go to our application process page.
Is there a fee for researchers to use Register4?
No, Register4 is free to use.
Will members represent the population the researcher needs?
Register4 membership is open to a broad cross-section of the community. Women and men aged 18 and over, with and without cancer. This is an online register, so all members must have an email address. We collect basic demographic information at signup including gender, date of birth and postcode, and can use this to target our members when launching a project. We currently do not collect any medical or cancer information at signup, however we are looking to implement this in 2017.
Who assesses the project proposal?
That’s the role of our Access Committee. This independent committee comprising research expertise and representatives from the community, reviews applications by researchers to access Register4 members and their data.
If you disagree with the decision of the Access Committee, you’re welcome to put your concerns in writing and send to:
The Chair, Access Committee
GPO Box 4126
SYDNEY NSW 2001
What happens after a project is approved?
The process for inviting members to participate in Register4 research projects has HREC approval from The University of Melbourne.
The Project Summary will be published on the Register4 website and our members will be sent an invitation email. Members can express interest in participating via the website, via their email invitation, or they can contact us directly by telephone or email.
What are the researcher's responsibilities to Register4 after recruitment?
Researchers are asked to communicate participation outcomes to Register4. They must also notify Register4 should an ethical incident occur involving a Register4 member. Register4 requires completion of an annual report to update us and the Register4 community on the progress of projects. Once the project is completed, we require a summary of the findings arising from the project.
More detailed information about researcher responsibilities is found in the Conditions of Use Agreement
Can commercial companies access Register4?
Yes. Projects from the commercial sector are held in the same high esteem as any other submission and are required to comply with the same protocol, ethics approval and peer review as all other applicants.
Can I contact the same members again for another research project?
We place a large emphasis on the protection of the privacy of all members. Researchers are not permitted to contact the same members again directly for participation in a new project or to provide more data for a project they are participating in. Should you wish to contact the same members again, you must submit another project to Register4, or submit an amendment to an existing project. Once approved, Register4 will send a new email invitation. Should it be required, we can identify the members who expressed interest previously and send an email only to this group.
What happens if there’s a change to my research plans or protocol?
Will I have to share my results?
Yes. You’ll be asked to share relevant information about your results (in layperson’s terms) for the benefit of everybody in the Register4 online community. You’ll have a reasonable timeframe after your project is completed to do this.
Can a researcher also volunteer to participate in research?
Absolutely. Please go to our Registration Page.
How do I make a complaint?