Welcome to our first newsletter for 2016, a lot has been happening at Register4 this year.




Cancer Research Update - February 2016

It's a LEAP YEAR!!!

Traditionally, this is the year that women take the initiative. This leap year we are asking Register4 members to take the initiative! This February, we ask you to invite someone to join us. It could be your significant other, family member, friend, colleague or even your local butcher!

If every member invites one person, we will DOUBLE the number of people available to fast-track cancer research. This means that researchers can save more time and money on recruitment, which they can then spend on finding the answers to cancer.

You can use our handy 'Invite a Friend' feature by clicking HERE.

In this issue: Focus on Cervical Cancer Prevention


A brief look at Cervical Cancer screening in Australia

Worldwide, cervical cancer is the 4th most common female cancer. In Australia it is the 14th, accounting for about 2% of cancers in women. In this issue we explore two major advancements in the prevention of cervical cancer in Australia.

The first advancement was the introduction of an Australian National Cervical Screening Program in 1991. It is recommended that all women aged 18 to 70 who have ever been sexually active have a Pap test (Pap smear) every two years. The test is able to detect changes in the cervix before the cancer develops. As a result of this screening program, the number of women diagnosed with cervical cancer decreased rapidly by 44% between 1991 and 2001.

The second major advancement occurred in 2007 when Australia became the first country to introduce a fully government-funded National Human Papilloma Virus (HPV) Vaccination Program. HPV is responsible for most cases of cervical cancer and the HPV vaccine can prevent up to 70% of cervical cancers. Currently the vaccine is given to girls and boys aged 12-13 years old, through school vaccination programs.

These advancements in cervical cancer prevention are a true cancer research success story. Cancer research led to the discovery that HPV is responsible for most cervical cancers, and research to develop the vaccine has given us a way of preventing this disease. While it may be some decades before researchers can assess the full impact of the vaccine on cervical cancer, it is hoped that in the future, the girls and boys of today will only know of cervical cancer as a rare disease.

How Register4 helped with a Cervical Cancer Study

Register4 was asked to help recruit for the VACCINE project conducted by a team at The Royal Women's Hospital, Melbourne. The study began in 2011 with the aim of evaluating the effectiveness of the Australian cervical cancer vaccination program. This project was led by Professor Suzanne Garland, Clinical Director of Microbiology and Infectious Diseases at the Royal Women's Hospital.

The researchers were looking for women aged 18 to 25 years and needed both vaccinated and unvaccinated women. The researchers were able to fill the quota for vaccinated women quickly, however, it was more difficult to find unvaccinated women. Register4 was asked to help find Victorian women aged 18-25 who had NOT received the HPV vaccine.

Recruitment for this project closed in 2015, and the researchers are currently analysing the results. It is expected there will be several scientific publications arising from this work. They have already reported an early finding in an article published in the journal Vaccine in 2015. They found 'a very low prevalence of vaccine-related HPV genotypes amongst vaccine-eligible women from Victoria, Australia'. These are very promising results, and we will keep you informed of further research published by the group about the VACCINE project.


Meet Clive - A Register4 member and cancer survivor

Clive first introduced himself to the Register4 Team in late 2015 when he sent us a moving story about his physical and emotional 'dance' with cancer. His wish is that his story might give hope and inspiration to others touched by cancer.

He was kind enough to send us a shorter account of his journey to be published in this newsletter. Take it away Clive...

My Fight/s with Cancer

As a younger man I was of good weight and I would like to say I was a fit chap.

Due to the usual stresses of life, love and all those things, I found myself picking up a lot of weight. To be exact over a ten year period my weight went from 85kg up to 131kg.

After a considerable amount of hard work and personal focus I was able to push my weight down to 92kg. With time and even more effort and good diet I pushed my weight down to 82kg. Little did I know at the time but the cancer was the driving force that made me lose 10kg in just under two weeks (92kg-82kg).

After years of suffering from hot sweats and months of prolonged coughing, vomiting and disorientation; I was diagnosed with a large and advanced cancerous growth on my kidney. Thankfully this was removed in June 2014, along with the adjoining lymph glands.

Unfortunately in November 2014, I had that horrible all-over sick feeling yet again and I feared the worst. After further tests I was diagnosed with a secondary cancer in my right lung. As of March 2015 my body gave me the very clear indication that I was ill yet again. Well, unfortunately my body was not telling me lies; I had in fact developed a cancer in my left lung.

At this point I feel the need to focus my comments on the very people who acted so swiftly and professional once my cancers were diagnosed. I struggle to find the words to adequately express my gratitude for the professional manner and individual care I have received during my fight with cancer. There are so many wonderful doctors, surgeons, nurses and carers that have touched my life during my journey with cancer and the wonderful care I have received. In my humble opinion the health care system needs money to operate, but as far as I can see hospitals run on love; the love of the staff to care for those who cannot care for themselves and this is a gift of incalculable value. So to all the staff that have helped me get through this period of my life I wish to thank you.

I would very much like to believe that by publishing my story on Register4 other people will find hope and inspiration when cancer touches their lives, and more people will join us on Register 4 and raise awareness of this Forum and the need for more research to cure cancer.



Cancer Concepts - Incidence vs Prevalence

If you are not used to reading articles about cancer you may find some of the lingo a little confusing. The terms 'incidence' and 'prevalence' often come up, here's how you should approach them.

Incidence should not be confused with prevalence. Prevalence refers to the proportion of cases in the population at a given time. For example 50 cases per 100,000 people. That's fairly straightforward.

Incidence is a little trickier because it involves a time-period, eg over ten years, rather than a particular moment in time. Incidence is more about how likely it is for a cancer to occur in a population over given time period.

Thus, incidence conveys information about the risk of contracting the disease, whereas prevalence indicates how widespread the disease is.

From the Register4 Team

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If you would like to contact us, you can reach us at info@register4.org.au or phone 1300 709 485

The Register4 team thanks you for taking an active role in cancer research. We look forward to bringing you more research projects so that together we can help reduce the burden of cancer.

We Can. I Can.

World Cancer Day 2016 was officially held on Thursday February 4th.
The global initiative seeks to raise the profile of cancer in a positive and inspiring way. The tagline 'We can. I can.' expresses the idea that people as a collective or as individuals can do their part to reduce the global burden of cancer.
Find out more about this great initiative on the official website:
www.worldcancerday.org or

copy and paste the
hashtag into your facebook search field to read stories and messages from around the world.


Help us find men and women < 35
We have some studies coming up looking for people aged <35. If you have any friends or family members who fit this age group we'd love you to pass our details on to them. Either direct them to our website - www.register4.org.au or use our handy 'Invite a Friend' feature by clicking HERE.
Thanks so much!

LifePool Study Update

The LIfePool project is over halfway to reaching their target of 100,000 women! LifePool is looking for women aged 40+ who have had or intend to have a mammogram. Help LifePool become one of the world's largest cohorts, providing an amazing research resource for study into breast cancer and women's health. Click HERE to find out more.




























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